Today we want to tell you several intertwined stories…

Hi, I’m Mar Servat, I’m 19, and I have a severe form of drug-resistant epilepsy. My unpredictable seizures have resulted in a multitude of injuries, including a broken nose and broken limbs. Growing up, I have required constant supervision. But there is a technology that could change all that…

We are Olivia, Liron and Katie, and we are documentary filmmakers based in Barcelona.

In 2018, we started making a documentary about Mar Servat, a 19-year-old girl, and the new technology that promises to change her life and the lives of thousands more: a headset that can predict seizures caused by epilepsy one minute before they happen.

From the moment we met Mar, we knew we had to tell her story.

Growing up, Mar has required constant supervision. That means 24 hours a day, always with someone at a distance of one metre or less from Mar.

Mar has had to overcome not only the physical obstacles of her condition, but also the social ones. Much worse than the injuries she has suffered, in Mar’s opinion, it is the sea of confusion, fear and misunderstanding that she faced as she grew up as a result of the lack of understanding and education about the condition in her hometown Barcelona.

At 19 years old and on the verge of adulthood, Mar represents a crucial transition from the dependence of parents and doctors to autonomy.

Through Mar’s story, we can show first-hand how important it is that community, family, positive representation, education and technological progress give her the ability to proactively manage her seizures and take control of her life.

And us, MJN. More than a year ago, Liron contacted us about his documentary project and proposed us to participate. With this documentary we seek to educate, encourage and empower not only people who live with epilepsy, but anyone who lives with a disease they feel they have not yet regained control of.

And to everyone who has helped to finance this documentary through @indiegogo.

In short, we are delighted that this documentary premieres on April 11 and thus achieve several goals:

  • Present the documentary in Barcelona as part of a fundraising event that we will organize with the charity for epilepsy, Mar de Somnis.
  • Air the documentary on local television channels and tell Mar’s story to tens of thousands of viewers throughout Spain.
  • Submit the documentary to relevant film, technology and epilepsy festivals.
  • Organize projections in collaboration with other charities of epilepsy.
  • Give the film to Mar de Somnis for future use in the education of children and families who visit it.
  • Give the documentary to Mar, who wants to continue educating teenagers about epilepsy in their school.
  • Create a powerful educational tool that will train many young people living with epilepsy.

At MJN we can only be grateful for all the experiences we have encountered in our project.

Come to the premiere of Mar de Sueños on Thursday 11 April at 19:30 at the Sala Nica in Barcelona. All the information about the event here.

MJN-SERAS

Find out your risk of having an epileptic seizure at any time and place.

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MJN

Nuestro sueño es ayudarte a hacer realidad tus sueños

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