In addition to the physical consequences of the disease, at MJN we really take into account the emotional impact it has. The fact of always living with the uncertainty of not knowing when the next seizure will come and not being able to control its consequences, means that often everything revolves around this continuous fear.
If to this situation we add that the epilepsy is stigmatized, that unfortunately our society does not have truthful information about the disease or that many people suffer employment discrimination, bullying at school… for the mere fact of having epilepsy, we find that the people affected have to bear a huge psychological burden.
By way of summary, we can list some consequences that often accompany epilepsy in various categories, both economic and emotional. For instance, not finding a job or losing it when your employer realizes that you have epilepsy. The fact that one of the parents of a child with epilepsy has to reduce or leave their work to become a caretaker. The fact of having accidents and hospital admissions due to falls. Having depression, anxiety or agoraphobia due to the fact of not being able to control where or when you will have the next seizure … Although it is difficult to quantify all these impacts, and all this information can be found in a fragmented way, we have been impressed by this study that talks about the emotional cost of epilepsy, published by the ILAE.
We would also like to highlight this infographic by zogenix that talks about the impact of Dravet syndrome. It remarks that the family of a child with Dravet are real heroes. And we cannot agree more.
MJN, with its MJN-SERAS device to assess the risk of epileptic seizure, manages to eliminate the uncertainty in the lives of people affected and those around them as it shows a warning signal before a seizure occurs. In this way, we can reduce very significantly all the negative impacts that epilepsy has, as previously commented.
n addition, and since our inception, we have established that we will spend 5% of our benefits on actions to eliminate the stigma that epilepsy still has today. Only by joining efforts with associations, public bodies, and other private entities that already follow this line of action, can we achieve this goal.
Finally, we would like to say that MJN-SERAS has been designed with the sole objective of improving the quality of life of people with epilepsy. And it has been devised by people who know first-hand what it means not knowing when the next seizure is going to take place. In fact, one of the founders of MJN has a daughter who has had drug-resistant epilepsy for over 15 years.